I didn’t know you had Crohns! I’m too excited sounding about that I’m aware but I started having GI symptoms at 10-ish (I have UC not Crohns) and it was a very long struggle of all the years that were supposed to be about being a kid and making friends and learning the world to get to a point where I’m not paranoid about the bathroom every second of every day. And then I learned that I messed up my colon irreparably and now have a procedure scheduled to remove it. Yay 🙃 I’m in my 20s it’s fine, I’ll get through it (and use the recovery of both steps to read and write a ton probably).
But anyway I wish you all the best at romance con in the way only someone who can relate can. And I’m interested to read that story. I haven’t be able to find a story I might want to write about that experience because it’s gross and also so vulnerable at the same time. People who can and do are like superheroes to me
Gross and vulnerable at the same time is RIGHT. I honestly never thought I'd write about my experience, either, so we'll see how this goes. But when I think about wounds, real wounds, that affect people's ability to believe they could ever find love, dealing with a chronic, painful, debilitating, and EMBARRASSING condition like Crohn's makes a whole lot of sense.
I'm so sorry to hear about your struggles with UC. My doctors couldn't agree on whether it was Crohn's or UC for me for a long time. I've heard Chloe Liese wrote a book with a FMC who has UC, and I've been meaning to read it to see how she handles it. Hugs to you and best of luck on your procedure!!
I didn’t know you had Crohns! I’m too excited sounding about that I’m aware but I started having GI symptoms at 10-ish (I have UC not Crohns) and it was a very long struggle of all the years that were supposed to be about being a kid and making friends and learning the world to get to a point where I’m not paranoid about the bathroom every second of every day. And then I learned that I messed up my colon irreparably and now have a procedure scheduled to remove it. Yay 🙃 I’m in my 20s it’s fine, I’ll get through it (and use the recovery of both steps to read and write a ton probably).
But anyway I wish you all the best at romance con in the way only someone who can relate can. And I’m interested to read that story. I haven’t be able to find a story I might want to write about that experience because it’s gross and also so vulnerable at the same time. People who can and do are like superheroes to me
Gross and vulnerable at the same time is RIGHT. I honestly never thought I'd write about my experience, either, so we'll see how this goes. But when I think about wounds, real wounds, that affect people's ability to believe they could ever find love, dealing with a chronic, painful, debilitating, and EMBARRASSING condition like Crohn's makes a whole lot of sense.
I'm so sorry to hear about your struggles with UC. My doctors couldn't agree on whether it was Crohn's or UC for me for a long time. I've heard Chloe Liese wrote a book with a FMC who has UC, and I've been meaning to read it to see how she handles it. Hugs to you and best of luck on your procedure!!
Absolutely! It’s so socially disabling in that way and honestly there should be more stories about it.
And technically my doctors are undecided (they call it plain old IBD) but they lean towards UC
And thank you for the well wishes! It’s in April so I’ve got some time before and also not enough
I'm rooting for you!! <3